Highlighting prevention this Stroke Awareness Month
May is dedicated to stroke awareness, which aims to highlight symptoms and prevention.
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Stroke is the second leading cause of death and the third leading cause of death and disability combined. It can affect people of all ages, races and backgrounds.
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The awareness month serves as a reminder of the importance of understanding stroke, its impact and how to prevent it.
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We have dedicated a webpage to featuring key facts, general information and advice on how to spot the signs.
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Source: World Stroke Organisation
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In The News
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Volunteers needed to help develop a new therapy
Volunteers needed to help develop a new therapy
The University of Birmingham is looking for volunteers to develop a new therapy which helps brain injury survivors focus on seeing themselves as the person they were before their trauma, and to maintain a good relationship with their partner.
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SameYou joins the UK Stroke Forum coalition
SameYou joins the UK Stroke Forum coalition
SameYou has joined the UK Stroke Forum, a coalition of 31 organisations who are all committed to improving stroke care in the UK.
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Five years with SameYou
Five years with SameYou
From the moment we launched, and Emilia told her story, thousands of survivors reached out to us to share details of their own journeys – which shockingly revealed a huge unmet need for rehabilitation.
Survivor Stories
Many of you have written to SameYou about your experience of brain injury and told us how you identified with Emilia's story. There was a common feeling of relief about hearing a familiar story from someone young, and speaking out to normalise the injury. People were comforted that Emilia had gone through something similar to them or to a family member or loved one.
The overwhelming emotion was of gratitude that Emilia was breaking her silence and that enabled and emboldened so many others to tell their brain injury story - some for the first time. It was as if people now have permission to speak out about their story.
I get days when I just want to give up. But after hearing your story it has made me realise, I'm not on my own!
You have told us that by sharing your stories, and reading other people's, offers hope, comfort and much needed peer-to-peer support that is often hard to find.
SameYou have created this support resource called Portraits to tell the untold story of brain injury. If you would like to share your story, you can submit your story via our Share your story page.
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Portrait: Tara
Portrait: Tara
In February 2022, I developed a sudden onset double vision. I've always worn glasses and put this down to not having had an eye test since before the COVID-19 pandemic...
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Portrait: Jodie
Portrait: Jodie
My TBI story began in 2018 with The Beast From The East. I fell at a train station as I was visiting my brother for a few days. I was discharged from A&E after a few hours, with a diagnosis and leaflet on concussion, as well as a diagnosis of whiplash. I was also advised to take paracetamol for any pain.
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Portrait: Sina-Marie
Portrait: Sina-Marie
A warm hello from Germany. I'm Sina-Marie, 29 years old and a ruptured brain aneurysm survivor. Since I found out about SameYou, I've wished it would have existed back in 2015 and wanted to tell my story for anybody interested. So here it is...
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Portrait: Julianne
Portrait: Julianne
My name is Julianne and at 18 weeks pregnant, I was diagnosed with a massive 15mm aneurysm near my occipital nerve. The last four years have been the biggest roller coaster of my life. I now have two sons, Aiden Grey who is three, and Sawyer John who is one, but it was a huge battle getting here.
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Portrait: Kassandra
Portrait: Kassandra
My name is Kassandra and I suffer from chronic migraine with aura, resulting from two traumatic head injuries. When I was three years old, I fell off a bed and landed on the hardwood floor, on the top of my head. About six months later, I started getting terrible migraines constantly. I was diagnosed with chronic migraine at eight years old.
This short film tells the stories of brain injury survivors from the survivors themselves
We asked them to tell us how they feel. Some of them have done this for the very first time. We applaud their courage for speaking out. We invite everyone to hear and understand the lived experiences of brain injury and find out what has helped people recover and what is needed to help so many more.
Brain injury doesn’t only happen to the brain…
Brain injury happens to the whole person: body, brain and spirit. So we have developed a range of resources to help you find your SameYou.
